The six-year-old boy was born albino, but only a third, which makes him look like a character in fairy tales and movies. The reason for the external similarity of the child with movie characters, alas, is not fabulous — the boy has a rare genetic disease, and his relatives with the same disease have a unique appearance that brought little pleasure.
Shamuel Silva from Brazil is only six years old. From ordinary boys of his age, he has a unique appearance. The child has a white crest that starts from the forehead and continues to the back of the head, writes Zing news.
Shamuel also has many birthmarks on his body that make him look like people with vitiligo. However, it owes its unusual appearance to a completely different disease.
The boy was born with piebaldism, a rare gene mutation syndrome. People with piebaldism are usually white areas of hair and scalp from birth. This “comb” sometimes runs down the nose and half of the face.
“Unlike vitiligo, spots on the body of a person with piebaldism do not grow larger over time. They absolutely do not change over the years, ” – said the boy’s mother Nivine in an interview with the channel Truly
Although the guy only went to the first class, but has already become a model, and his appearance is popular in the world of children’s fashion. He was lucky to be born in the age of Millennials, unlike his relatives.
In addition to Shamuel, four other children were born to his family with piebaldism, including his mother, grandmother, and cousins. They faced a harsh reaction from society, which was not satisfied with the unusual appearance of the family.
Before Shamuel became a model, his family often felt guilty about his appearance. Dona’s grandmother rarely left the house for fear of criticism from others.
Despite the fact that she lives in a hot tropical climate, a woman always chooses long skirts and shirts with closed sleeves to hide spotty pigmentation on the body.
The women of the family even regularly dyed their hair to look like other people. However, Shamuel’s mother decided to protect her son from discrimination and began to fight the stigma of society.
She tried to make her son love himself with his special appearance, and was not afraid to show his personality.
“I was afraid of his first day at school. It wasn’t easy for me as a child. However, Samuel was born at a different time. The teacher accepted my son’s appearance normally and on the first day explained to the other children why Shamuel looks different. The children did not behave negatively or aggressively towards him. On the contrary, they studied it with interest, examined the spots and touched them, ” Niviane said.
Soon the boy’s uncle decided to share several photos of Shamuel in social networks, where his appearance attracted a lot of positive attention. In the future, he was invited to participate in fashion shoots.
Shamuel also works as a children’s clothing model in London, Paris, Sao Paulo and Toronto. The white crest has become his calling card and attracts others. After years of inferiority complex, Shamuel’s family is increasingly proud that they can be themselves.
